Young Persons’ Project Coordinator

Job Summary 
Job Title Young Persons’ Project Coordinator
Salary £20,000 - £24,000 (dependent on experience & expertise)

35 Hours Per Week Flexible working hours to accommodate work requirements


Maidenhead, Berskhire, SL6 7RJ (Map)

There is scope for the role to be based in another part of the UK with remote working and management systems 

Reporting to Support Services Manager

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The Young Persons’ Project Coordinator will be responsible for the development of the NRAS’ young persons services including JIA specific projects, as directed by the Youth and Young Persons’ advisory board and the NRAS Services Director.

The role will support volunteer members of the advisory board responsible for the strategic development of young persons’ service. Duties will include acting as secretariat to the advisory i.e. planning group meetings, taking and circulating minutes, implementing recommendations and reporting to the Services Manager.

The role will involve engaging with young people, their parents and carers as well as health professionals and developing appropriate interventions/resources and campaigns as agreed by the Advisory Board and the NRAS SMT.

Establishing new peer mentoring services one for parents and one for young people utilising appropriate online community platforms. This will require appropriate training of those offering peer support to others. Ensuring good monitoring of such a service to ensure safety for all volunteers and service users.

Planning alongside marketing, social media and website development colleagues, how to market new services and promote campaign engagement. 

It is also anticipated that engagement with parents and siblings of JIA young people will need to have support systems. In many cases this will involve referral to existing services outside of NRAS but there may be occasion to develop new interventions. 

There will be event management duties, potential annual meetings, as well as zoom and other online facilities. 

The post holder will be instrumental in developing the new service framework of NRAS JIA and Young Persons’ services and resources

Main Responsibilities

  • Providing admin support to the Chair of the Young Persons’ advisory panel, coordinating meetings, producing minutes and action plans. Liaising with NRAS services manager to develop interventions within NRAS service framework.
  • Developing a clear and transparent service framework, as directed by the advisory Board and the NRAS service manager.
  • To work with the social media team providing updates for the JIA website and the NRAS website, ensuring information is relevant and up to date. The site will be a critical tool in reaching and communicating the vision of the service and its offering to children and young people with inflammatory arthritis. 
  • Working with the NRAS engagement manager the post-holder will be responsible for recruiting and managing all Young Person Volunteers/ ambassadors, this includes applications, induction, and training new Volunteers.
  • Responsible for managing and supporting the NRAS Young Volunteer Ambassador networks across the UK, establishing tasks and projects. This will include event management, communication systems and recognition of achievements.
  • Responsible for finding and matching Volunteers to take part in numerous projects and events across the UK, ensuring volunteers are equipped and  fully briefed, maintaining communications between the stakeholders and volunteers.
  • Planning any family and youth events potentially alongside other stakeholders i.e. other charities working in this space
  • Working with schools, colleges and universities to help promote awareness of inflammatory arthritis in young people as well as supporting fundraising opportunities. 
  • Responsible for finding appropriate people living with JIA to participate in NICE technology appraisals alongside the NRAS Patient Champion for new medicines coming to market for treating JIA and/or Adult JIA.
  • To travel within the UK to help build and maintain relationships with NRAS Groups, Volunteers and stakeholders including rheumatology teams who support the local NRAS groups, identifying suitable volunteers ti further NRAS strategy aims and objectives. 
  • Recording individuals and communications on the NRAS CSR system.
  • To ensure expenditure is kept within budget.


To participate in NRAS team training and contribute to team activities.

To attend regular team meetings and individual catchups.

To undertake any other duties as requested by a manager consistent with the role.

The role will involve working outside of normal office working hours and some weekend work is to be expected

Extensive travel across the UK  

To maintain confidentiality at all times. 

Ensure respect for all other members of staff and volunteers.

To communicate effectively with all NRAS staff and volunteers.

Position in Organisation

The post holder will report to the Director of Services. 

The post holder will work closely with:

  • Director of Services
  • Young Persons’ Advisory board
  • The NRAS Helpline Team and the Information and Support Manager
  • A range of stakeholders predominately paediatric health professionals

The post holder may also work with: 

  • CEO
  • The Senior Trusts and Grants Fundraiser
  • The Trusts and Company Giving Fundraiser
  • Policy and Communications Manager
  • Membership Officer
  • Marketing and Communications Assistant
  • Social media team

Other Duties 

  • Regular travel (UK based) including overnight stays
  • Out of hours working, potentially including occasional weekends
  • Any other duties as requested by the SMT

Person Specification







A levels


  • Youth working qualification
  • Health and social care
  • Policy and communications




·       Work in a similar role developing young people’s network

·       Implementation of service framework through careful consultation



Knowledge and Skills

·       Excellent social media knowledge and skill

·       Excellent written communication skills

·       Excellent people skills

·       Proficient use of databases

·       Proficient use of Microsoft Office package


·       Use of Salesforce database

·       Understanding of Mail-Chimp or other mass email marketing tool

·       Understanding of the health environment

·       Understanding of co-development



Personal Circumstances & Attributes

·       Full driving licence and car owner

·       Outgoing and friendly personality, able to communicate confidently with people of all levels, from health professionals to stakeholders and volunteers

·       Ability to build and maintain positive relationships with volunteers and be a motivational influence

·       Ability to work under pressure and to deadlines

·       Ability to prioritise and manage multiple projects

·       Highly motivated and committed

·       Great attention to detail

·       Flexible

·       Team player

·       Positive outlook and approach, can do attitude

·       Ability to represent charity at external events

·       Willingness to travel and work out of hours when required

Confident presenter/speaker either in a training environment or at events


Commitment to use engagement


Creating a voice to shape NHS environments

If/ when representing NRAS

Represent NRAS in a senior capacity to external stakeholders, funders and partners promoting it as a respected, trusted and ambitious charity resulting in successful working and funding partnerships. NRAS expects all employees to respect the unique contribution of every individual and operates an equal opportunity and diversity policy.

All employees must work responsibly within the health and safety policy of the organisation and ensure they are observing this at all times.If this role sounds of interest and you have the required skill set please apply via this site.

For more information and an informal chat please contact Iain McNicol on 01628 823524 / email:

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