About Apni Jung (English)
Our fight against rheumatoid arthritis
For some time now NRAS and our Health Professional Medical Advisor in this field, Dr. Kanta Kumar, (Lecturer at Manchester University and Researcher at The Kellgren Centre for Rheumatology, Manchester Royal Infirmary), have wanted to be able to provide a tailored service and support for the UK South Asian population. One of our long term strategic aims is to make our services more visible, relevant and accessible to those who need us most, particularly those communities who, for reasons of language, culture and/or health literacy skills may be less able to negotiate about their healthcare needs or successfully navigate the health system. Our Apni Jung project is launching to co-incide with the 2016 British Society for Rheumatology annual congress and we shall be presenting about this project at this year’s conference.
A real challenge for health professionals treating patients with rheumatoid arthritis (RA) from minority backgrounds is finding a way to help those who don’t speak English as a first language and who may even have low literacy skills in terms of written materials in their own language, get access to high quality educational materials on their condition. We are for the first time providing a new web area with information about RA and its treatment in a combination of Hindi and Urdu.
This web area will also include video clips of Asian patients talking about their experiences so that those who don’t read their mother tongue can feel supported and less isolated. NRAS knows from extensive experience of running peer to peer support programmes just how beneficial this kind of peer support can be. We hope that all rheumatology health professionals treating people with RA from the South Asian communities in the UK will sign-post their patients to this website. In future we hope to be able to find and train suitable volunteers who speak fluent English and Hindi, Urdu and/or Punjabi to provide links into and peer support for these communities. For further information, please contact us on firstname.lastname@example.org.