Global Patient Registry
The Global Rheumatology Alliance needs to understand how coronavirus affects rheumatic, autoimmune and autoinflammatory diseases. Calling on rheumatology health professionals to participate in gathering patient data.
Their mission is to create a secure, de-identified, international case reporting registry and curate and disseminate the outputs from that registry.
This registry will facilitate their primary goals, which are to:
- Understand the outcomes of patients with rheumatologic conditions who develop COVID–19 infection and the influence of their comorbidities and medications on their outcomes.
- Understand the influence of rheumatologic medications, such as hydroxychloroquine, on the outcomes of patients who develop COVID–19 infection.
They aim to be able to provide information back to doctors, patients, and researchers about how rheumatic disease patients and those treated with rheumatology drugs fare when they get infected. Data collected will potentially provide valuable information going forward to help make decisions about how to direct further studies and treat our patients.