‘What does Remission mean to you?’
Understanding and improving communication between people with rheumatoid arthritis (RA) and their healthcare professionals to enhance engagement and long term outcomes
We recently conducted an online survey entitled ‘What does remission mean to you?’ Our aim was to uncover the views and experiences of people living with RA, looking at the term ‘remission’, what remission means to people with RA and their understanding of DAS28 (Disease Activity Score 28). We were delighted that over 1,100 people took part!
This report summarises the key findings and learnings from the survey
• Half of the people surveyed had not discussed remission with their doctors or nurses
• 9 out of 10 were not aware what constitutes clinical remission
• Over 80% did not know their DAS28 score
• 86% of people with RA believe more education is needed for patients and 65% believe more education is needed for HCPs
We are committed to empowering those affected by RA, and improving awareness and understanding around disease management. Clinical remission in RA may be achievable for some patients, and all patients should aim to work with their clinicians to better define what remission means for them and set personal goals to achieve the lowest disease activity possible. Effective management can have both short and long term benefits in the future and help you to lead a better life with RA.
Please click here to download a copy of the ‘What does remission mean to you?’ survey findings. We are continuing this campaign through the Remission Mission, a site where you can upload your message and photo and raise awareness of rheumatoid arthritis.
Following the ‘What does remission mean to you?’ survey, we filmed 4 people living with RA to gain a more personal perspective of their lives and to share any advice they can offer.
Please click on the 4 short videos below to hear their personal stories. We hope you enjoy.
The ‘What does remission mean to you?’ survey is a collaborative project between the National Rheumatoid Arthritis Society, Roche Products Ltd and Chugai Pharma UK Ltd, funded by Roche and Chugai. Editorial control remains with NRAS.
National Rheumatoid Arthritis Society
Ground Floor, 4 The Switchback, Gardner Road, Maidenhead, Berks, SL6 7RJ
Registered in England and Wales No: 7127101
Charity Nos: 1134859 SCO39721
RCUKCOMM00116s – February 2014